Which best describes you?*
Person living with Hypophosphatasia (HPP)
Caregiver
Patient advocacy affiliate
Other (please describe)
What is your/your loved one's gender?
Male
Female
Non-binary
Prefer not to say
What is the age range of the patient living with HPP?*
Caregiver to patient aged 0-18
18-24
25-35
36-45
46-65
65+
Prefer not so say
How long ago were you or your loved one diagnosed with HPP?*
Within the last 6 months
6-12 months ago
1-5 years ago
More than 5 years ago
Prefer not to answer
N/A
About how long before diagnosis did the symptoms start?
6-12 months prior to diagnosis
1-5 years prior to diagnosis
More than 5 years prior to diagnosis
N/A
Are you or your loved one currently taking an Alexion product for HPP?*
Yes
No
How did you hear about this program?
Alexion Website
Emailed Invitation
MailedInvitation
Friend or Family Member (Another Patient/Caregiver)
Physician/Healthcare Provider
Patient Advocacy Group
Alexion HPP treatment Facebook page
Other (Social Media Platforms / Online / Ads)
To help guide future Unmask HPP program development, would you like to grant permission to Alexion and those working on its behalf to contact you for feedback on your patient program?*
Yes
No
18 or older*:
By checking this box, I confirm I am 18 years of age or older.
Use data for registration*:
I agree to my personal data being processed in this registration portal for the purpose of registering my interest in attending an upcoming patient program sponsored by Alexion.
Opt-in:
I give Alexion, or third-party companies working on behalf of Alexion, permission to contact me for marketing purposes, otherwise provide me with information about Alexion’s products, services, and programs or other topics of interest, conduct market research, or otherwise ask me about my experience with or thoughts about such topics in accordance with Alexion's Privacy Notice. Alexion will not sell or transfer my information to any unrelated third party for marketing purposes without my express permission. I understand that I can opt out of these communications at any time by contacting Alexion, as provided for on the communication.